I have been off the grid for quite a while, but rest assured, I am still alive and kickin’…..well, dreaming of kicking! lol
Today marks 2 months since my first stem cell treatment in Panama. I would love to be writing to you all and telling you how I am hopping and skipping and jumping up a storm. That unfortunately, is not what I am able to report. There have been many changes since Panama, not all good, not all bad….so here is a quick overview of what I am noticing right now, and up to this point.
- WAY more stiff and spastic. So much so that it is very hard for me to stand using the sit to stand lift and I have a very hard time sleeping because of the pain and spasm.
- Due to the extreme spasticity increase, I am no longer able to stand with or use my walker at the current time. 🙁
- Just this one increase has caused a massive shift in quality of life and ability…it has triggered quite a bit of depression, unfortunately.
Despite the overall poop storm from the increase in pain and spasm…I have noticed some definite improvements.
- The most prominent improvement has been in my stamina/energy. I am able to do A LOT of tasks throughout the day, despite any pain I might have at the time. I seem to be achieving a lot more on days that I am motivated to do things! 🙂 Like yesterday, I was having Steven pull windows out for me so that I could do my spring cleaning of all of the rain drains and such. I clean my kitchen sink and counters every morning, sweep the floor when the pain allows, and even clean appliances and bathrooms when I feel motivated to do so. 🙂
- I also seem to have a much better tolerance for cold. It depends on the day, but I was out in my garage in shorts and a t-shirt, organizing/cleaning, when it was only about 45 degrees outside. That is a massive change for me!
- I seem to be more together with my thoughts and organization. I don’t have near as many instances of getting to a room, only to forget why I went there. I have started doing things in a lot more efficient order, making me have to run in circles less. So I would say memory and thinking acuteness have improved as well.
Many people ask me if I would do it again. That is a hard question to answer because there are a lot of variables.
Do I want to fly again?
– NO! Not if I am unable to walk and be more self reliant….traveling in such a way with the extensive physical limitations I deal with is NOT fun or free of massive complications and stress. It was a very traumatic experience in many ways.
Do I want stem cells again?
– YES!!! Many many many times YES! I saw what they can do for me, even if it was short lived. I loved the clinic and the people, they were wonderful! And the procedure was painless! I just wish that it was available here…I would be doing it once a week! 😀
Do I recommend it to others?
– YES! If there is a way that you can afford to go, GO! We were very blessed to have this opportunity, and I know that the stem cells can do positive things for many many diseases and ailments, not just MS.
What am I doing now?
– Trying my best not to crumble from the current storm and disappointing setback. I am seeing a physical therapist weekly and we are trying what we can to get a handle on the spasticity. We are not having much luck so far.
– I am also undergoing once a month IV solumedrol. This is what my neuro calls a steroid push. My first infusion was last month, and I will be having my 2nd one tomorrow. I will continue to do this for a 6 month course…praying it can help me get a handle on this inflammation. The first infusion helped a lot for a couple of days, but it was very short lived…we are hoping the 2nd one will last a bit longer.
On a happier note, we celebrated the union of some very dear friends last month…and I got to DANCE! 😀 I had so much fun, even from my chair, dancing and laughing with the most wonderful people in my life! So very blessed to have such awesome friends! I was also able to share a dance with my dear hubby…we celebrate 10 years this year…and God is still blessing our broken road! 🙂
The stem cells are still in my system, and I have another 7 months to see some potential awesomeness before they decide to retire….so please keep praying! Pray that my body would succomb to the supreme healing that is pumping through my veins. I am a fighter. Despite the tears that try to drown me, I will not drown without a fight! So I tip my hat, and say “bring it on!” There was a reason for all of this, and even if I don’t see it yet, I am certain that God will surprise me….He always does! 😉
God bless all of you!