2 months Post Panama Stem Cells

I have been off the grid for quite a while, but rest assured, I am still alive and kickin’…..well, dreaming of kicking! lol

Today marks 2 months since my first stem cell treatment in Panama. I would love to be writing to you all and telling you how I am hopping and skipping and jumping up a storm. That unfortunately, is not what I am able to report. There have been many changes since Panama, not all good, not all bad….so here is a quick overview of what I am noticing right now, and up to this point.

Bad:

  1. WAY more stiff and spastic. So much so that it is very hard for me to stand using the sit to stand lift and I have a very hard time sleeping because of the pain and spasm.
  2. Due to the extreme spasticity increase, I am no longer able to stand with or use my walker at the current time. πŸ™
  3. Just this one increase has caused a massive shift in quality of life and ability…it has triggered quite a bit of depression, unfortunately.

Good:

Despite the overall poop storm from the increase in pain and spasm…I have noticed some definite improvements.

  1. The most prominent improvement has been in my stamina/energy. I am able to do A LOT of tasks throughout the day, despite any pain I might have at the time. I seem to be achieving a lot more on days that I am motivated to do things! πŸ™‚ Like yesterday, I was having Steven pull windows out for me so that I could do my spring cleaning of all of the rain drains and such. I clean my kitchen sink and counters every morning, sweep the floor when the pain allows, and even clean appliances and bathrooms when I feel motivated to do so. πŸ™‚
  2. I also seem to have a much better tolerance for cold. Β It depends on the day, but I was out in my garage in shorts and a t-shirt, organizing/cleaning, when it was only about 45 degrees outside. That is a massive change for me!
  3. I seem to be more together with my thoughts and organization. I don’t have near as many instances of getting to a room, only to forget why I went there. I have started doing things in a lot more efficient order, making me have to run in circles less. So I would say memory and thinking acuteness have improved as well.

Many people ask me if I would do it again. That is a hard question to answer because there are a lot of variables.

Do I want to fly again?

– NO! Not if I am unable to walk and be more self reliant….traveling in such a way with the extensive physical limitations I deal with is NOT fun or free of massive complications and stress. It was a very traumatic experience in many ways.

Do I want stem cells again?

– YES!!! Many many many times YES! I saw what they can do for me, even if it was short lived. I loved the clinic and the people, they were wonderful! And the procedure was painless! I just wish that it was available here…I would be doing it once a week! πŸ˜€

Do I recommend it to others?

– YES! If there is a way that you can afford to go, GO! We were very blessed to have this opportunity, and I know that the stem cells can do positive things for many many diseases and ailments, not just MS.

What am I doing now?

– Trying my best not to crumble from the current storm and disappointing setback. I am seeing a physical therapist weekly and we are trying what we can to get a handle on the spasticity. We are not having much luck so far.

– I am also undergoing once a month IV solumedrol. This is what my neuro calls a steroid push. My first infusion was last month, and I will be having my 2nd one tomorrow. I will continue to do this for a 6 month course…praying it can help me get a handle on this inflammation. The first infusion helped a lot for a couple of days, but it was very short lived…we are hoping the 2nd one will last a bit longer.

On a happier note, we celebrated the union of some very dear friends last month…and I got to DANCE! πŸ˜€ I had so much fun, even from my chair, dancing and laughing with the most wonderful people in my life! So very blessed to have such awesome friends! I was also able to share a dance with my dear hubby…we celebrate 10 years this year…and God is still blessing our broken road! πŸ™‚

The stem cells are still in my system, and I have another 7 months to see some potential awesomeness before they decide to retire….so please keep praying! Pray that my body would succomb to the supreme healing that is pumping through my veins. I am a fighter. Despite the tears that try to drown me, I will not drown without a fight! So I tip my hat, and say “bring it on!” There was a reason for all of this, and even if I don’t see it yet, I am certain that God will surprise me….He always does! πŸ˜‰

God bless all of you!

 

Comments

  1. Love you Aunt Amy. I think the next seven months will be full of awesome changes. Hopefully they are in full swing by July, so you can help walk me down the isle! πŸ™‚ If not, I have something special planned for you!

    • mrsmadel says:

      Love you Pearley girl! Thats what I am shooting for! Your special surprises might scare me a bit though! LOL (jk)

      • It’s not scary I promise πŸ™‚ I will try to remember to call you tonight and tell you more about it as long as my body doesn’t shut down. Been living ‘healthy’ this last week preparing for round two of my glucose test… and I am dragging myself around to say the least.

  2. warriorforGod says:

    Its good to see you keeping your chin up. You are a fighter and I know you will keep getting back up no matter how many times you are knocked down. I will be there with you until the end of the 10th round cheering you on, and will be standing and holding hands with you when you are announced as the champion!

    I love you!!!!

  3. You give me hope.

  4. You seem to be on a better mood, and that is great, but that does not mean the stem cells helped you on that.

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